Developing Tautai Lavea‘i, a Breast Cancer Patient Nativation Program in American Samoa
Résumé
This article focuses on development of the psychosocial-cultural components of a breast cancer patient navigation program (PNP) in the medically underserved, albeit culturally-rich Territory of American Samoa. Efforts to reduce cancer morbidity and mortality in American Samoa must necessarily consider the territory’s limited cancer resources and indigenous culture, as well as the individuals at risk for poor health outcomes and premature death. Within this complex set of challenges resides the prospect of health equity and opportunities for advancing service innovations that meaningfully plait native ways of knowing with Western evidence- based practice. Increasing adherence to diagnostic and treatment procedures is of significant concern to the American Samoa Cancer Community Network who initiated this inquiry to assess patients lost to follow-up, describe treatment-seeking influences, and identify cultural preferences for inclusion in a PNP tailored on fa‘aSamoa or the Samoan worldview.
Références
American Samoa Medical Center Authority. (n.d.). LBJ Tropical Medical Center. Retrieved April, 2009, from, http://www.lbj.as/
American Samoa Office of the Governor. (2007). Health and Human Services Report. American Samoa: Author.
American Samoan Government, Department of Commerce. (2006). American Samoa Statistical Yearbook. American Samoa: Author.
American Samoan Government, Department of Commerce. (2008). American Samoa Statistical Yearbook. American Samoa: Author.
Braun, K., Allison, A., & Tsark, J. U. (2008). Using community-based research model to design cancer patient navigation training. Progress in Community
Health Partnerships: Research, Action, and Change, 2(4), 240–329.
Creswell, J. W. (1994). Research Design: Qualitative and Quantitative Approaches. Thousand Oaks, CA.: Sage.
Darnell, J. (2007). Patient navigation: A call to action. Social Work, 52(1), 81–84. DiMatteo, M. (2003). Future directions in research on consumer-provider communication and adherence to cancer prevention and treatment. Patient Education and Counseling, 50(1), 23–26.
DiMatteo, M., & DiNicola, D. D. (1982). Achieving Patient Compliance:
The Psychology of the Medical Practitioner’s Role. New York, NY: Pergamon.
Ell, K., Padgett, D., Vourlekis, B., Nissly, J., Pineda, D., Sarabia, O., Lee, P. J. (2002). Abnormal mammogram follow-up: A pilot study in women with low income. Cancer Practice, 10(3), 130–138.
Ell, K., Vourlekis, B., Lee, P. J., & Xie, B. (2007). Patient navigation and case management following an abnormal mammogram: A randomized clinical trial. Preventive Medicine, 44(1), 26–33.
Freeman, H. (2006). Patient navigation: A community based strategy to reduce cancer disparities. Journal of Urban Health, 83(2), 139–141.
Gehlert, S., Mininger, C., Sohmer, D., & Berg, K. (2008). (Not so) gently down the stream: Choosing targets to ameliorate health disparities. Health and Social Work, 33(3), 163–167.
Hubbell, F. A., Luce, P.H., & McMullin, J.M. (2005). Exploring beliefs about
cancer among American Samoans: Focus group findings. Cancer Detection & Prevention, 29(2), 109–115.
Krippendorff, K. (1980). Content Analysis: An Introduction to its Methodology. Beverly Hills, CA: Sage.
Lev, E. (1997). Bandura’s theory of self-efficacy: Applications to oncology. Scholarly Inquiry Nursing Practice, 11(1), 21–37.
Little, V. (2009). Palliative care needs in American Samoa. Journal of Palliative Medicine, 12(5), 411–413.
Milner, G. B. (1993). Samoan Dictionary. Samoan-English. English-Samoan. Auckland, N. Z.: Pasifika.
Minkler, M., & Wallerstein, N. (Eds.). (2003). Community-Based Participatory Research in Health. San Francisco: Jossey-Bass.
Mulitalo-Lauta, P. (2000). Fa’aSamoa and Social Work Within the New Zealand Context. Palmerston North, N.Z.: Dunmore Press.
Masi, C., Blackman, D. J., & Peek, M. E. (2007). Interventions to enhance breast cancer screening, diagnosis, and treatment among racial and ethnic minority women. Medical Care Research Review, 64(5), S195S–S242.
Mishra, S., Hess, J., & Luce, P. H. (2003). Predictors of indigenous healer use among Samoans. Alternative Therapies in Health and Medicine, 9(6), 64–69.
Patient Navigator Outreach and Chronic Disease Prevention Act of 2005, 109th Cong. 18 (2005).
Petereit, D. G., Molloy, K., Reiner, M. L., Helbig, P;, Cina, K., Miner, R., Spotted Tail, C., Rost, C., Conroy, P., & Roberts, C. R. (2008). Establishing a patient navigation program to reduce cancer disparities in the American Indian communities of Western South Dakota: Initial observations and results. Cancer Control, 15(3), 254–259.
Polynesian Voyaging Society. (2010). Kawaharada, D. The settlement of Polynesia, part 1. Retrieved March 15, 2010, from http://pvs.kcc.hawaii.edu/ migrationspart1.html
Press, R., Carrasquillo, O., Sciacca, R. R., Giardina, E. G. (2008). Racial/ethnic disparities in time to follow-up alter an abnormal mammogram. Journal of Women’s Health, 17(6), 923–930.
Puaina, S., Aga, D. F., Pouesi, D., & Hubbell, A. (2008). Impact of traditional
Samoan lifestyle (fa‘aSamoa) on cancer screening practices. Cancer Detection and Prevention, 32(1), S23–S28.
Ruidas, L., Adaoag, A., Tofaeono W. V., & Sesepasara, M. L. (2004). Cancer in American Samoa. Pacific Health Dialog, 11(2), 17–22.
Schwaderer, K., & Itano, J. K. (2007). Bridging the healthcare divide with patient navigation: Development of a research program to address disparities. Clinical Journal of Oncology Nursing, 11(5), 633–639.
Sloan, F., & Gelband, H. (Eds.). (2007). Cancer Control Opportunities in Low- and Middle-Income Countries. Washington, D. C.: The National Academies Press.
Victorson, D., & Peterman, A. H. (2006). Cancer-related adherence. In E. L. O’Donohue (Ed.), Promoting Treatment Adherence: A Practical Handbook for Health Care Providers. New York, NY: Sage.
Whistler, W. A. (1996). Samoan Herbal Medicine: ‘o lā’au ma vai fofō o Samoa. Bloomingdale: Indiana University.