Stories from Cancer Camp: Tales of Glitter and Gratitude
DOI:
https://doi.org/10.11575/jah.v0i0.53235Keywords:
hermeneutics, storytelling, cancer camp, paediatric oncologyAbstract
Each year in Canada, approximately 1400 children and adolescents under the age of 20 are diagnosed with cancer. It is well recognized that childhood cancer affects the entire family, and innumerable challenges accompany this diagnosis. In recognition of the challenges that accompany this disease, cancer camps started in the 1970s to help children and their families escape the rigidity and severity of cancer treatment. Very little is known about how camps affect these families, and to that end, a philosophical hermeneutic study was conducted to understand the meaning of children’s cancer camps for the child with cancer and the family.  Six families were interviewed to bring understanding to this topic, and while the research included findings related to the concept of play, fit and acceptance, grief, and community, this paper will detail the finding related to storytelling and the reshaping of experiences that happens by virtue of being at camp.
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References
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Binding, L. L., & Tapp, D. M. (2008). Human understanding in dialogue: Gadamer’s recovery of the genuine. Nursing Philosophy, 9, 121-130. doi:10.1111/j.1466-769X.2007.00338.x
Bluebond-Langner, M., Perkel, D., Goertzel, T., Nelson, K., & McGeary, J. (1990). Children’s knowledge of cancer and its treatment: Impact of an oncology camp experience. The Journal of Pediatrics, 116(2), 207-213. doi:10.1016/S0022-3476(05)82876-8
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Dean, R. G. (1995). Stories of AIDS: The use of narrative as an approach to understanding in an AIDS support group. Clinical Social Work Journal, 23(3), 287-304. doi:10.1007/ BF02191752
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Frank, A. W. (2000). The standpoint of storyteller. Qualitative Health Research, 10(3), 354-365. doi:10.1177/104973200129118499
Gadamer, H. G. (1989). Truth and method (2nd rev. ed., J. Weinsheimer & D. G. Marshall, Trans.). New York, NY: Continuum (Original work published 1960).
Grondin, J. (2003). The philosophy of Gadamer (K. Plant, Trans.). Montreal, QC, Canada: McGill-Queens University Press (Original work published 1999).
Hattie, J., Marsh, H., Neill, J., & Richards, G. (1997). Adventure education and Outward
Bound: Out-of-class experiences that make a lasting difference. Review of Educational Research, 67(1), 43-87. Retrieved from http://www.jstor.org/stable/ 1170619
Jackson, D., & Mannix, J. (2003). Mothering and women’s health: I love being a mother but... there is always something new to worry about. Australian Journal of Advanced Nursing, 20(3), 30-37. Retrieved from http://www.ajan.com.au
Jardine, D. W. (2012). “The memories of childhood have no order and no endâ€: Pedagogical reflections on the occasion of the release, on October 9, 2009, of the remastered version of the Beatles’ Sergeant Pepper’s Lonely Hearts Club Band©. Journal of Applied Hermeneutics. Article 1. Retrieved from http://hdl.handle.net/ 10515/sy5cv4c40
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Kessell, M., Resnick, M. D., & Blum, R. W. M. (1985). Adventure, etc. – A health promotion program for chronically ill and disabled youth. Journal of Adolescent Health Care, 6, 433-438. doi:10.1016/S0197-0070(85)80048-6
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Kitzinger, C. (2004). Feminist approaches. In C. Seale, G. Gobo, J. F. Gubrium, & D. Silverman (Eds.), Qualitative Research Practice (pp. 125-140). London, UK: Sage.
Koch, T. (1996). Implementation of a hermeneutic inquiry in nursing: Philosophy, rigor, and representation. Phenomenological Research, 24(1), 174-184. doi:10.1046/ j.1365-2648.1996.17224.x
Koch, T. (1998). Storytelling: Is it really research? Journal of Advanced Nursing, 28(6), 1182-1190. doi:10.1046/j.1365-2648.1998.00853.x
Laing, C. M. (2012). In play, at play. Journal of Applied Hermeneutics, Article 6. http://jah.synergiesprairies.ca/jah/index.php/jah/article/view/16/pdf
Laing, C. M. & Moules, N. J. (2013). The island of misfit toys. Journal of Applied Hermeneutics, August 5, 2013, Article 8. http://hdl.handle.net/10515/sy5js9hq4
Laing, C. M. & Moules, N. J. (in press). Children’s cancer camps: A sense of community, a sense of family. Journal of Family Nursing.
Leseho, J., & Block, L. (2005). ‘Listen and I tell you something’: Storytelling and social action in the healing of the oppressed. British Journal of Guidance and Counseling, 33(2), 175-184. doi:10.1080/03069880500132706
Mishna, F., Michalski, J., & Cummings, R. (2002). Camps as social work interventions: Returning to our roots. Social Work with Groups, 24(3/4), 153-171. doi: 10.1300/J009v24n03_11
Mooney, B., & Holt, D. (1996). The storyteller’s guide. Little Rock, AR: August House.
Moules, N. J. (2002). Hermeneutic inquiry: Paying heed to history and Hermes – An ancestral, substantive, and methodological tale. International Journal of Qualitative Methods 1(3), Article 1. Retrieved from http://www.ualberta.ca/ ~ijqm/
Moules, N. J., Laing, C. M., McCaffrey, G., Tapp, D. M., & Strother, D. (2012). Grandparents’ experiences of childhood cancer. Part one: Doubled and silenced. Journal of Pediatric Oncology Nursing, 29(3), 119-132. doi: 10.1177/1043454212439626
Moules, N. J., McCaffrey, G., Morck, A. C., & Jardine, D. W. (2011). Editorial: On applied hermeneutics and the work of the world. Journal of Applied Hermeneutics, 1, Editorial 1. http://hdl.handle.net/10515/sy5d795p4
Murray, J. S. (2001). Self-concept of siblings of children with cancer. Issues in Comprehensive Pediatric Nursing, 24, 85-94. doi:10.1080/01460860116709
Okri, B. (1997). A way of being free. London, UK: Phoenix House.
Packman, W., Mazaheri, M., Sporri, L., Long, J. K., Chesterman, B, Fine, J., & Amylon, M. D. (2008). Projective drawings as measures of psychosocial functioning in siblings of pediatric cancer patients from the camp Okizu study. Journal of Pediatric Oncology Nursing, 25(1), 44-55. doi:10.1177/1043454207311915
Ricoeur, P. (1981). Hermeneutics and the human sciences: Essays on language, action, and interpretation (J. B. Thompson, Trans.). New York, NY: Cambridge University Press.
Riley, T., & Hawe, P. (2005). Researching practice: The methodological case for narrative inquiry. Health Education Research, 20(2), 226-236. doi:10.1093/ her/cyg122
Rinpoche, S. (1993). The Tibetan book of living and dying (rev. ed.). New York, NY: Harper Collins.
Rubin, H. J., & Rubin, I. S. (2005). Qualitative interviewing: The art of hearing data (2nd ed.). Thousand Oaks, CA: Sage.
Sandelowski, M. (1993). Rigor or rigor mortis: The problem of rigor in qualitative research revisited. Advances in Nursing Science, 16(2), 1-8. Retrieved from http://journals.lww. com/advancesinnursingscience/pages/default.aspx
Walker, D. A., & Pearman, D. (2009). Therapeutic recreation camps: An effective intervention for children and young people with chronic illness? Archives of Disease in Childhood, 94(5), 395-402. doi:10.1136/adc.2008.145631
Welch, M. J., Carlson, A. M., Larson, D., & Fena, P. (2007). Clinical profile, health-related quality of life, and asthma control in children attending US asthma camps. Annals of Allergy, Asthma, and Immunology, 99(6), 496-501. doi:org.ezproxy.lib. ucalgary.ca/10.1016/S1081-1206(10)60377-8
Wellisch, D. K., Crater, B., Wiley, F. M., Belin, T. R., & Weinstein, K. (2006). Psychosocial impacts of a camping experience for children with cancer and their siblings. Psycho-Oncology, 15, 56-65. doi:10.1002/pon.922
Widdershoven, G. (1993). The story of life: Hermeneutic perspectives on the relationship between narrative and life history. In A. Lieblich & R. Josselson (Eds.), The narrative study of lives (pp. 1–20). Thousand Oaks, CA: Sage.
Wiltshire, J. (1995). Telling a story, writing a narrative: Terminology in health care. Nursing Inquiry, 2(2), 75-82. doi:10.1111/j.1440-1800.1995.tb00145.x
Yeats, W. B. (1928). Among the school children. Retrieved from http://www.poemhunter. com/poem/among-school-children/
Abram, D. (1996). The spell of the sensuous: Perception and language in a more-than-human world. New York, NY: Vintage Books.
Atkinson, R. (2002). The life story interview. In J. F. Gubrium & J. A. Holstein (Eds.), Handbook of interview research: Context and method (pp. 121-140). Thousand Oaks, CA: Sage.
Austergard, K. (2012). Doing it the Gadamerian way – Using philosophical hermeneutics as a methodological approach in nursing science. Scandanavian Journal of Caring Sciences, 26(4), 829-834. Retrieved from http://onlinelibrary.wiley.com.ezproxy.lib.ucalgary.ca /store/doi/10.1111/j.1471-6712.2012.00993.x
Bauman, Z. (2004). Wasted lives: Modernity and its outcasts. Cambridge, MA: Polity Press.
Bayer, K. (2004). The anti aging trend: Capitalism, cosmetics and mirroring the spectacle. Journal of Communication, Culture, and Technology, 5, 1-19. Retrieved from http://gnovisjournal.org/files/Kathy-Bayer-Anti-Aging-Trend.pdf
Beattie, M. (2000). Gratitude: Affirming the good things in life. Los Angeles, CA: Jacket Flap Books.
Benson, P. J. (1987). The relationship between self-concept and a summer camping program for children and adolescents who have cancer. Journal of Pediatric Oncology Nursing, 4(1-2), 42-43. doi:10.1177/104345428700400116
Berger, K. S. (2008). The developing person: Through the life span (7th ed.). New York, NY: Worth Publishers.
Binding, L. L., & Tapp, D. M. (2008). Human understanding in dialogue: Gadamer’s recovery of the genuine. Nursing Philosophy, 9, 121-130. doi:10.1111/j.1466-769X.2007.00338.x
Bluebond-Langner, M., Perkel, D., Goertzel, T., Nelson, K., & McGeary, J. (1990). Children’s knowledge of cancer and its treatment: Impact of an oncology camp experience. The Journal of Pediatrics, 116(2), 207-213. doi:10.1016/S0022-3476(05)82876-8
Bosticco, C., & Thompson, T. L. (2005). Narratives and storytelling in coping with grief and bereavement. Omega Journal of Death and Dying, 51(1), 1-16. Retrieved from http://baywood.com/journals /previewjournals.asp?id=0030-2228
Bowles, N. (1995). Storytelling: A search for meaning within nursing practice. Nurse Education Today, 15(5), 365-369. doi:10.1016/S0260-6917
Canadian Association of Pediatric Oncology Camps. (2012). About CAPOC. Retrieved from http://www.cancer camps.ca/?q=node/34
Carlick, A., & Biley, F. C. (2004). Thoughts on the therapeutic use of narrative in the promotion of coping in cancer care. European Journal of Cancer Care, 13(4), 308-317. doi:10.1111 /j.1365-2354.2004.00466.x
Carpenter, P. J., Sahler, O. J. Z., & Davis, M. S. (1990). Use of a camp setting to provide medical information to siblings of pediatric cancer patients. Journal of Cancer Education, 5(1), 21-26. doi:10.1080/08858199009528030
Churchill, L. R., & Churchill, S. W. (1982). Storytelling in medical arenas: The art of self-determination. Literature and Medicine, 1, 73-79. doi:10.1353/lm.2011.0231
Cohen L. (1992) Anthem. On The Future [CD]. Columbia, NY. Columbia Records.
Connelly, F. M., & Clandinin, D. J. (1990). Stories of experience and narrative enquiry. Educational Researcher, 19(5), 2-14. Retrieved from http://www.jstor.org/stable/117600
Crotty, M. (1998). The foundations of social research: Meaning and perspective in the research process. London, CA: Sage.
Dean, R. G. (1995). Stories of AIDS: The use of narrative as an approach to understanding in an AIDS support group. Clinical Social Work Journal, 23(3), 287-304. doi:10.1007/ BF02191752
East, L., Jackson, D., O’Brien, L., & Peters, K. (2010). Storytelling: An approach that can help to develop resilience. Nurse Researcher, 17(3), 17-25. Retrieved from http://nurseresearcher. rcnpublishing.co.uk
France, C. M., & Uhlin, B. D. (2006). Narrative as an outcome domain in psychosis. Psychology and Psychotherapy: Theory, Research and Practice, 29(1), 53-67. doi: 10.1348/1476083 05X41001
Frank, A. W. (1995). The wounded storyteller: Body, illness, and ethics. Chicago, IL: The University of Chicago Press.
Frank, A. W. (2000). The standpoint of storyteller. Qualitative Health Research, 10(3), 354-365. doi:10.1177/104973200129118499
Gadamer, H. G. (1989). Truth and method (2nd rev. ed., J. Weinsheimer & D. G. Marshall, Trans.). New York, NY: Continuum (Original work published 1960).
Grondin, J. (2003). The philosophy of Gadamer (K. Plant, Trans.). Montreal, QC, Canada: McGill-Queens University Press (Original work published 1999).
Hattie, J., Marsh, H., Neill, J., & Richards, G. (1997). Adventure education and Outward
Bound: Out-of-class experiences that make a lasting difference. Review of Educational Research, 67(1), 43-87. Retrieved from http://www.jstor.org/stable/ 1170619
Jackson, D., & Mannix, J. (2003). Mothering and women’s health: I love being a mother but... there is always something new to worry about. Australian Journal of Advanced Nursing, 20(3), 30-37. Retrieved from http://www.ajan.com.au
Jardine, D. W. (2012). “The memories of childhood have no order and no endâ€: Pedagogical reflections on the occasion of the release, on October 9, 2009, of the remastered version of the Beatles’ Sergeant Pepper’s Lonely Hearts Club Band©. Journal of Applied Hermeneutics. Article 1. Retrieved from http://hdl.handle.net/ 10515/sy5cv4c40
Jardine, D. W., & Clandinin, D. J. (1987). Does it rain on Vancouver Island? Teaching as storytelling. Curriculum Inquiry, 17(4), 471-481. Retrieved from http://www. jstor.org.ezproxy.lib.ucalgary.ca/action/showPublication?journalCode=currinqu
Johnson, R. (2009). Reclaiming your real self: A psychological and spiritual integration. Charleston, SC: Book Surge.
Kessell, M., Resnick, M. D., & Blum, R. W. M. (1985). Adventure, etc. – A health promotion program for chronically ill and disabled youth. Journal of Adolescent Health Care, 6, 433-438. doi:10.1016/S0197-0070(85)80048-6
Kids Cancer Care Foundation of Alberta. (2012). Retrieved from http://www.kidscancercare. ab.ca/kccf/camp_and_community.htm
King, T. (2003). The truth about stories: A native narrative. Toronto, ON, Canada: House of Anansi Press.
Kitzinger, C. (2004). Feminist approaches. In C. Seale, G. Gobo, J. F. Gubrium, & D. Silverman (Eds.), Qualitative Research Practice (pp. 125-140). London, UK: Sage.
Koch, T. (1996). Implementation of a hermeneutic inquiry in nursing: Philosophy, rigor, and representation. Phenomenological Research, 24(1), 174-184. doi:10.1046/ j.1365-2648.1996.17224.x
Koch, T. (1998). Storytelling: Is it really research? Journal of Advanced Nursing, 28(6), 1182-1190. doi:10.1046/j.1365-2648.1998.00853.x
Laing, C. M. (2012). In play, at play. Journal of Applied Hermeneutics, Article 6. http://jah.synergiesprairies.ca/jah/index.php/jah/article/view/16/pdf
Laing, C. M. & Moules, N. J. (2013). The island of misfit toys. Journal of Applied Hermeneutics, August 5, 2013, Article 8. http://hdl.handle.net/10515/sy5js9hq4
Laing, C. M. & Moules, N. J. (in press). Children’s cancer camps: A sense of community, a sense of family. Journal of Family Nursing.
Leseho, J., & Block, L. (2005). ‘Listen and I tell you something’: Storytelling and social action in the healing of the oppressed. British Journal of Guidance and Counseling, 33(2), 175-184. doi:10.1080/03069880500132706
Mishna, F., Michalski, J., & Cummings, R. (2002). Camps as social work interventions: Returning to our roots. Social Work with Groups, 24(3/4), 153-171. doi: 10.1300/J009v24n03_11
Mooney, B., & Holt, D. (1996). The storyteller’s guide. Little Rock, AR: August House.
Moules, N. J. (2002). Hermeneutic inquiry: Paying heed to history and Hermes – An ancestral, substantive, and methodological tale. International Journal of Qualitative Methods 1(3), Article 1. Retrieved from http://www.ualberta.ca/ ~ijqm/
Moules, N. J., Laing, C. M., McCaffrey, G., Tapp, D. M., & Strother, D. (2012). Grandparents’ experiences of childhood cancer. Part one: Doubled and silenced. Journal of Pediatric Oncology Nursing, 29(3), 119-132. doi: 10.1177/1043454212439626
Moules, N. J., McCaffrey, G., Morck, A. C., & Jardine, D. W. (2011). Editorial: On applied hermeneutics and the work of the world. Journal of Applied Hermeneutics, 1, Editorial 1. http://hdl.handle.net/10515/sy5d795p4
Murray, J. S. (2001). Self-concept of siblings of children with cancer. Issues in Comprehensive Pediatric Nursing, 24, 85-94. doi:10.1080/01460860116709
Okri, B. (1997). A way of being free. London, UK: Phoenix House.
Packman, W., Mazaheri, M., Sporri, L., Long, J. K., Chesterman, B, Fine, J., & Amylon, M. D. (2008). Projective drawings as measures of psychosocial functioning in siblings of pediatric cancer patients from the camp Okizu study. Journal of Pediatric Oncology Nursing, 25(1), 44-55. doi:10.1177/1043454207311915
Ricoeur, P. (1981). Hermeneutics and the human sciences: Essays on language, action, and interpretation (J. B. Thompson, Trans.). New York, NY: Cambridge University Press.
Riley, T., & Hawe, P. (2005). Researching practice: The methodological case for narrative inquiry. Health Education Research, 20(2), 226-236. doi:10.1093/ her/cyg122
Rinpoche, S. (1993). The Tibetan book of living and dying (rev. ed.). New York, NY: Harper Collins.
Rubin, H. J., & Rubin, I. S. (2005). Qualitative interviewing: The art of hearing data (2nd ed.). Thousand Oaks, CA: Sage.
Sandelowski, M. (1993). Rigor or rigor mortis: The problem of rigor in qualitative research revisited. Advances in Nursing Science, 16(2), 1-8. Retrieved from http://journals.lww. com/advancesinnursingscience/pages/default.aspx
Walker, D. A., & Pearman, D. (2009). Therapeutic recreation camps: An effective intervention for children and young people with chronic illness? Archives of Disease in Childhood, 94(5), 395-402. doi:10.1136/adc.2008.145631
Welch, M. J., Carlson, A. M., Larson, D., & Fena, P. (2007). Clinical profile, health-related quality of life, and asthma control in children attending US asthma camps. Annals of Allergy, Asthma, and Immunology, 99(6), 496-501. doi:org.ezproxy.lib. ucalgary.ca/10.1016/S1081-1206(10)60377-8
Wellisch, D. K., Crater, B., Wiley, F. M., Belin, T. R., & Weinstein, K. (2006). Psychosocial impacts of a camping experience for children with cancer and their siblings. Psycho-Oncology, 15, 56-65. doi:10.1002/pon.922
Widdershoven, G. (1993). The story of life: Hermeneutic perspectives on the relationship between narrative and life history. In A. Lieblich & R. Josselson (Eds.), The narrative study of lives (pp. 1–20). Thousand Oaks, CA: Sage.
Wiltshire, J. (1995). Telling a story, writing a narrative: Terminology in health care. Nursing Inquiry, 2(2), 75-82. doi:10.1111/j.1440-1800.1995.tb00145.x
Yeats, W. B. (1928). Among the school children. Retrieved from http://www.poemhunter. com/poem/among-school-children/
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