Holistic experiences of Indigenous carer-employees in Southern Ontario

Authors

  • Bharati Sethi Trent University, Department of Political Studies
  • Jacob van Haaften Trent University, Frost Centre for Canadian and Indigenous Studies

DOI:

https://doi.org/10.55016/ojs/jisd.v13i3.80085

Keywords:

Caregiving, Carer-employees

Abstract

This qualitative study uses Indigenous ethical protocols and the Medicine Wheel as a guiding framework for deductive coding to examine the mental, physical, emotional, and spiritual care provided by ten Indigenous Carer-Employees (CEs) living and working in Ontario. CEs are individuals who work in paid employment while providing unpaid care to family, friends, and/or relatives with physical, mental and/or cognitive disability or challenges. The paper adopts a holistic perspective by acknowledging the Medicine Wheel's four aspects—spiritual, emotional, mental, and physical well-being—to understand the nature of care provided by these CEs to their loved ones from an Indigenous perspective. This care manifests in a plethora of ways, including the importance of aiding loved ones with intellectual tasks, the need to provide physical labour, the importance of providing a safe emotional space for loved ones, and the role of helping with spirituality in the caregiving practice. The role of the workplace, including policies, experiences, and the differences between Indigenous and non-Indigenous employers, is also explored through inductive thematic analysis. This paper contributes to the growing literature on CEs and contemporary Indigenous caregiving. It provides suggestions for future scholarship to elevate the voices of Indigenous CEs, the importance of Carer-Friendly Workplace Policies, and the necessity to consider participant positionality in all research, particularly in research involving Indigenous participants, where the impacts of colonialism continue to pervade into many aspects of daily life.

Downloads

Download data is not yet available.

References

Abdi, A., Soufinia, A., Borji, M., & Tarjoman, A. (2019). The effect of religion intervention on life satisfaction and depression in elderly with heart failure. Journal of Religion and Health, 58(3), 823–832. https://doi.org/10.1007/s10943-018-0727-7

Ambtman-Smith, V. N., Crawford, A., D’Hondt, J., Lindstone, W., Linklater, R., Longboat, D., & Richmond, C. (2024). Incorporating First Nations, Inuit and Métis traditional healing spaces within a hospital context: A place-based study of three unique spaces within Canada’s oldest and largest mental health hospital. International Journal of Environmental Research and Public Health, 21(3), 282. https://doi.org/10.3390/ijerph21030282

Amin, I., & Ingman, S. (2014). Eldercare in the transnational setting: Insights from Bangladeshi transnational families in the United States. Journal of Cross-Cultural Gerontology, 29(3), 315–328. https://doi.org/10.1007/s10823-014-9236-7

Bédard, R. E. M.-K. (2009). Role Models: An Anishinaabe-kwe Perspective. Canadian Woman Studies, 26(3), 190–192. https://www.proquest.com/docview/217444108?sourcetype=Scholarly%20Journals

Blum, E. R., Stenfors, T., & Palmgren, P. J. (2019). Benefits of massive open online course (MOOC) participation: Qualitative synthesis (preprint). Journal of Medical Internet Research, 22(7), e17318. https://doi.org/10.2196/17318

Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. http://dx.doi.org/10.1191/1478088706qp063oa

Brijnath, B. (2009). Familial bonds and boarding passes: Understanding caregiving in a transnational context. Identities, 16(1), 83–101. https://doi.org/10.1080/10702890802605836

Canadian Council for Aboriginal Business & Indspire. (2020). Insights into Indigenous post-secondary graduates’ experiences in the Canadian workforce. https://indspire.ca/wp-content/uploads/2020/09/CCAB-Indspire-AODA_English3_FINAL-SEP3.pdf

Charmaz, K. (2006). Grounded theory. In J. Smith (Ed.), Qualitative Psychology: A Practical Guide to Research Methods (pp. 81–110). Sage.

Clarke, V., & Braun, V. (2013). Teaching thematic analysis: Overcoming challenges and developing strategies for effective learning. Psychologist, 26(2), 120-123.

Debassige, B. (2010). Re-conceptualizing anishinaabe mino-bimaadiziwin (the good life) as research methodology: A spirit-centered way in anishinaabe research. Canadian Journal of Native Education, 33(1), 11–28. https://www.proquest.com/docview/864885139?pq-origsite=gscholar&fromopenview=true

DeCourtney, C. A., Jones, K., Merriman, M. P., Heavener, N., & Branch, P. K. (2004). Establishing a Culturally Sensitive Palliative Care Program in Rural Alaska Native American Communities. Journal of Palliative Medicine, 6(3), 501–510. https://doi.org/10.1089/109662103322144871

Fleming, J., & Ledogar, R. J. (2008). Resilience, an evolving concept: A review of literature relevant to Aboriginal research. Pimatisiwin, 6(2), 7–23.

Government of Canada, Department of Justice. (2019). Indigenous overrepresentation in the criminal justice system. JustFacts. https://www.justice.gc.ca/eng/rp-pr/jr/jf-pf/2019/may01.html

Habjan, S., Prince, H., & Kelley, M. L. (2012). Caregiving for Elders in First Nations communities: Social system perspective on barriers and challenges. Canadian Journal on Aging / La Revue Canadienne Du Vieillissement, 31(2), 209–222. https://doi.org/10.1017/s071498081200013x

Hammond, C., Thomas, R., & Rice, C. (2022). Widening the circle of care: Digital stories of community-based caregiving in a Mohawk First Nation. International Journal of Indigenous Health, 17(2), 82-95. https://doi.org/10.32799/ijih.v17i2.36513

Hawken, T., Turner-Cobb, J., & Barnett, J. (2018). Coping and adjustment in caregivers: A systematic review. Health Psychology Open, 5(2), 205510291881065. https://doi.org/10.1177/2055102918810659

Hochschild, A. R. (1983). The Managed Heart: Commercialization of Human Feeling. University of California Press.

Holland, M. R. (2022). More than chores: The invisible health work of family caregivers in rural New Brunswick, Canada. Health & Place, 73, 102726. https://doi.org/10.1016/j.healthplace.2021.102726

Holzapfel, D., Adelson, A., & McUlsky, J. (2016). What workplaces can do to support employee caregivers. Generations, 39(4), 96–100. https://www.proquest.com/scholarly-journals/what-workplaces-can-do-support-employee/docview/1764312603/se-2

Ireson, R., Sethi, B., & Williams, A. (2016). Availability of caregiver-friendly workplace policies (CFWPs): An international scoping review. Health & Social Care in the Community, 26(1), e1–e14. https://doi.org/10.1111/hsc.12347

Jewell, E., Doucet, A., Falk, J., & Hilston, K. (2022). “Looking after our own is what we do”: Urban Ontario Indigenous perspectives on juggling paid work and unpaid care work for adult family members. Wellbeing, Space and Society, 3, 100102. https://doi.org/10.1016/j.wss.2022.100102

Johnston, G., Vukic, A., & Parker, S. (2012). Cultural understanding in the provision of supportive and palliative care: Perspectives in relation to an indigenous population. BMJ Supportive & Palliative Care, 3(1), 61–68. https://doi.org/10.1136/bmjspcare-2011-000122

Kelley, M. L., Prince, H., Nadin, S., Brazil, K., Crow, M., Hanson, G., Maki, L., Monture, L., Mushquash, C. J., O’Brien, V., & Smith, J. (2018). Developing palliative care programs in Indigenous communities using participatory action research: a Canadian application of the public health approach to palliative care. Annals of Palliative Medicine, 7(S2), S52–S72. https://doi.org/10.21037/apm.2018.03.06

Kurtgöz, A., & Edis, E. K. (2023). Spiritual care from the perspective of family caregivers and nurses in palliative care: A qualitative study. BMC Palliative Care, 22(1), 161. https://doi.org/10.1186/s12904-023-01286-2

Lorenz, F., Whittaker, L., Tazzeo, J., & Williams, A. (2021). Availability of caregiver-friendly workplace policies: An international scoping review follow-up study. International Journal of Workplace Health Management, 14(4), 459–476. https://doi.org/10.1108/ijwhm-10-2019-0136

Mackieson, P., Shlonsky, A., & Connolly, M. (2018). Increasing rigor and reducing bias in qualitative research: A document analysis of parliamentary debates using applied thematic analysis. Qualitative Social Work, 18(6), 147332501878699. https://doi.org/10.1177/1473325018786996

Mashford-Pringle, A., & Shawanda, A. (2023). Using the Medicine Wheel as theory, conceptual framework, analysis, and evaluation tool in health research. SSM - Qualitative Research in Health, 3, 100251. https://doi.org/10.1016/j.ssmqr.2023.100251

Mullin, J., Lee, L., Hertwig, S., & Silverthorne, G. (2001). A native smudging ceremony: A young native patient in palliative care teaches his caregivers a lesson in spirituality and cultural diversity. The Canadian Nurse, 97(9), 20-22.

Nissen, R. D., Viftrup, D. T., & Hvidt, N. C. (2021). The process of spiritual care. Frontiers in Psychology, 12, 674453. https://doi.org/10.3389/fpsyg.2021.674453

Ogden, C., & Tutty, L. M. (2023). My parents, my grandparents went through residential school, and all this abuse has come from it: Examining intimate partner violence against Canadian Indigenous women in the context of colonialism. Journal of Interpersonal Violence, 38(23-24), 12185-12209. https://doi.org/10.1177/08862605231192580

O’Sullivan, A. (2015). Pulled from all sides: The sandwich generation at work. WORK: A Journal of Prevention, Assessment & Rehabilitation, 50(3), 491–494. https://doi.org/10.3233/WOR-141959

Pakenham, K. I., Bursnall, S., Chiu, J., Cannon, T., & Okochi, M. (2006). The psychosocial impact of caregiving on young people who have a parent with an illness or disability: Comparisons between young caregivers and noncaregivers. Rehabilitation Psychology, 51(2), 113–126. https://doi.org/10.1037/0090-5550.51.2.113

Palinkas, L., Horwitz, S., Green, C., Wisdom, J., Duan, N., & Hoagwood, K. (2015). Purposeful sampling for qualitative data collection and analysis in mixed method implementation research. Administration and Policy in Mental Health and Mental Health Services Research, 42(5), 533–544. https://doi.org/10.1007/s10488-013-0528-y

Patterson, A., & Williams, A. (2025). Achieving a caregiver-friendly workplace standard for Canadian carer-workers: An ex ante evaluation of potential uptake. Evaluation and Program Planning, 111, 102582. https://doi.org/10.1016/j.evalprogplan.2025.102582

Peters, I., & Wilson, K. (2017). The business case for employers supporting carers: Reflecting on a UK model. International Journal of Care and Caring, 1(3), 415–420. https://doi.org/10.1332/239788217x15018369385347

Reading, C. (2018). Structural determinants of Aboriginal Peoples’ health. In M. Greenwood, S. de Leeuw, & N. M. Lindsay (Eds.), Determinants of Indigenous Peoples’ Health (pp. 3–17). Canadian Scholar’s Press.

Redvers, N., Marianayagam, J., & Blondin, B. (2019). Improving access to Indigenous medicine for patients in hospital-based settings: a challenge for health systems in northern Canada. International Journal of Circumpolar Health, 78(2), 1589208. https://doi.org/10.1080/22423982.2019.1589208

Rottenberg, S., Sethi, B., & Williams, A. (2023). Transnational caring in times of COVID-19: The experiences of visible minority immigrant carer-employees. Wellbeing, Space and Society, 4, 100129. https://doi.org/10.1016/j.wss.2023.100129

Sethi, B. (2022). Negotiating culture, geographical distance, and employment: The lived experiences of European transnational carer employees. Wellbeing, Space and Society, 3, 100083. https://doi.org/10.1016/j.wss.2022.100083

Sethi, B., Williams, A., & Leung, J. L. S. (2022). Caregiving across international borders: A systematic review of literature on transnational CEs. Journal of Cross-Cultural Gerontology, 37(4), 427–461. https://doi.org/10.1007/s10823-022-09468-w

Statistics Canada. (2022). Indigenous Peoples and communities. Government of Canada. https://www.rcaanc-cirnac.gc.ca/eng/1100100013785/1529102490303

Steiner, A. M., & Fletcher, P. C. (2017). Sandwich generation caregiving: A complex and dynamic role. Journal of Adult Development, 24(2), 133–143. https://doi.org/10.1007/s10804-016-9252-7

Thomas, C. (1993). De-Constructing concepts of care. Sociology, 27(4), 649–669. https://doi.org/10.1177/0038038593027004006

Vuksan, M., Williams, A., & Crooks, V. (2012). Family friendly policies: Accommodating end‐of‐life caregivers in workplaces. International Journal of Workplace Health Management, 5(1), 4–14. https://doi.org/10.1108/17538351211215357

Wang, L., Williams, A., & Kitchen, P. (2018). Health of caregiver-employees in Canada. International Journal of Workplace Health Management, 11(6), 382–394. https://doi.org/10.1108/ijwhm-04-2018-0043

Ward, A., Buffalo, L., McDonald, C., L’Heureux, T., Charles, L., Pollard, C., Tian, P. G., Anderson, S., & Parmar, J. (2023). Three perspectives on the experience of support for family caregivers in First Nations communities. Diseases, 11(1), 47. https://doi.org/10.3390/diseases11010047

Wispelwey, B., Tanous, O., Asi, Y. M., Hammoudeh, W., & Mills, D. (2023). Because its power remains naturalized: introducing the settler colonial determinants of health. Frontiers in Public Health, 11, 1137428. https://doi.org/10.3389/fpubh.2023.1137428

Zhang, G., Zhang, Q., & Li, F. (2024). The impact of spiritual care on the psychological health and quality of life of adults with heart failure: A systematic review of randomized trials. Frontiers in Medicine, 11, 1334920. https://doi.org/10.3389/fmed.2024.1334920

Downloads

Published

2025-10-02

Issue

Section

Articles