How Governments Could Best Engage Community Organizations to Co-Design COVID-19 Pandemic Policies for Persons with Disabilities
The COVID-19 pandemic and the policy measures adopted in response have disproportionately impacted persons with disabilities. Given the increased risk of COVID-19 and the resulting health impact for this vulnerable population, governments must engage stakeholders such as community organizations
to co-design pandemic response plans. Collaboration with key stakeholders could assist in transforming services in crucial areas, such as health, where emergency policies are organized around the needs of persons with disabilities.
Unfortunately, there is inadequate data collection and insufficient emergency preparedness planning and responses for persons with disabilities. This knowledge gap means consideration of health and social policy implications specific to the needs and experiences of persons with disabilities is lacking. This research study aimed to evaluate strategies through which decision-makers could engage stakeholders, such as community organizations, to co-design disability-inclusive policy responses during the COVID-19 outbreak in Alberta.
Through interviews, the study focused on understanding the level of engagement, barriers to community organizations’ engagement and participatory policy aspects best suited for co-design. Key findings from the research highlighted the participants’ viewpoints on barriers, facilitators, preferences and other critical approaches through which decision-makers engage with community organizations. Results highlighted that top-down and tokenistic consultation approaches limit community organizations’ engagement in designing pandemic planning and response. Inaccessible ways of consultation and navigation barriers exacerbate obstacles to stakeholder engagement. Stakeholder engagement in data surveillance efforts was unclear, and the impact assessment process needs strengthening. The study results also showed that having COVID-19 disability advisory groups at the federal and provincial levels are a robust mechanism to connect communities with the government. However, the process of influencing government decision-making and policy actions needs to be openly communicated to civil society.
Solutions are achievable. Political commitment, long-term investments and an accessible engagement environment would significantly improve stakeholder engagement. Governments must transition from traditional consultative methods to sustainable engagement practices while sharing how public policies reflect communities’ input. Financial investments must create an accessible consultation environment for designing participatory pandemic policies that reflect the priorities of persons with disabilities.
Some key recommendations emerging from our analysis include:
Invest financially to create an accessible consultation environment for co- designing policies.
Consult stakeholders to develop new regulations or adjust existing ones to create inclusive pandemic response plans.
Inform how pandemic response plans include and address community inputs and concerns in a transparent manner.
Professionally contract stakeholders to co-design and communicate pandemic information.
Engage with multiple stakeholders to evaluate the impact of pandemic response plans.
The following is the copyright statement of SPPP.
Copyright © <Author name> <year>. This is an open-access paper distributed under the terms of the Creative Commons license CC BY-NC 4.0, which allows non-commercial sharing and redistribution so long as the original author and publisher are credited.
Publication Copyright and Licensing
The following guidelines and information, provided in six sections, are intended for authors (the “Author”) who are invited to write a paper (the “Work”) for The School of Public Policy Publications (the “Publisher”). The rights and responsibilities conveyed in the SPP Author Agreement will only apply once your paper is accepted for publication. At that point in the publication process, you will be asked to download the form and return a signed copy via e-mail to firstname.lastname@example.org. Please review the below information to ensure agreement with SPPP policies.
Section 1: Author’s Grant of Rights
In consideration of the Publisher’s agreeing to publish the Work in The School of Public Policy Publications, the Author hereby grants to the Publisher the following:
1.1 The irrevocable, royalty-free right to publish, reproduce, publicly display, publicly perform and distribute the Work in perpetuity throughout the world in all means of expression by any method or media now known or hereafter developed, including electronic format;
1.2 The irrevocable, royalty-free right to use the Author’s name and likeness in association with the Work in published form and in advertising and promotional materials related to the Work; and
1.3 The irrevocable, royalty-free right to license others to do any or all of the above.
Section 2: Prior Publication & Publication by Others
2.1 The Author agrees not to publish the Work, or authorize any third party to publish the Work, either in print or electronically, prior to publication of the Work by the Publisher.
2.2 The Author agrees not to publish the Work in any publication outlet which is substantially similar to The School of Public Policy Publications for a period of six (6) months after publication of the Work in The School of Public Policy Publications. Substantially similar is defined as a non-subscription, open-access publication outlet with a similar mandate/vision and intended audience.
2.3 Should the Author publish or distribute the Work elsewhere at any time or in any alternate format, the Author agrees to contact The School of Public Policy Publications to inform them of the subsequent publication.
2.4 Should the Author publish or distribute the Work elsewhere at any time or in any alternate format, the Author agrees to make reasonable efforts to ensure that any such additional publication cites the publication in The School of Public Policy Publications by author, title, and publisher, through a tagline, author bibliography, or similar means. A sample acknowledgement would be:
“Reprinted with permission from the author. Originally published in the The School of Public Policy Publications, http://www.policyschool.ca/publications/.”
Section 3: Editing and Formatting
The Author authorizes the Publisher to edit the Work and to make such modifications as are technically necessary or desirable to exercise the rights in Section 1 in differing media and formats. The Publisher will make no material modification to the content of the Work without the Author’s consent.
Section 4: Author’s Ownership of Copyright and Reservation of Rights
4.1 Nothing in this agreement constitutes a transfer of the copyright by the Author, and the copyright in the Work is subject to the rights granted by this agreement.
4.2 The Author retains the following rights, including but not limited to, the right:
4.2.1 To reproduce and distribute the Work, and to authorize others to reproduce and distribute the Work, in any format;
4.2.2 To post a version of the Work in an institutional repository or the Author’s personal or departmental web page so long as The School of Public Policy Publications is cited as the source of first publication of the Work (see sample acknowledgement above).
4.2.3 To include the Work, in whole or in part, in another work, subject to Section 2 above and provided that The School of Public Policy Publications is cited as the source of first publication of the Work (see sample acknowledgement above).
4.3 The Editors and Editorial Board of The School of Public Policy Publications requires authors to publish the Work under a Creative Commons Attribution-NonCommercial 4.0 International licence (CC BY-NC 4.0). This license allows others to distribute, remix, tweak, and build upon the Work for noncommercial purposes, and ensures the Author is credited for the original creation. This onward licensing is subject to section 2.4 of this agreement, which further ensures that the original publisher is credited.
Section 5: Author’s Warranties and Undertakings
The Author warrants that:
5.1 The Author is the sole author of the Work, or if a joint author, the Author has identified within the Work the other authors, and holds the copyright, either solely or jointly, and has the power to convey the rights granted in this agreement.
5.2 The Work has not previously been published, in whole or in part, except as follows:
5.3 Any textual, graphic or multimedia material included in the Work that is the property or work of another is either explicitly identified by source and cited in the Work or is otherwise identified as follows:
5.4 To the best of the Author’s knowledge, the Work does not contain matter that is obscene, libelous, or defamatory; it does not violate another’s civil right, right of privacy, right of publicity, or other legal right; and it is otherwise not unlawful.
5.5 To the best of the Author’s knowledge, the Work does not infringe the copyright or other intellectual property or literary rights of another.
5.6 The Author will indemnify and hold Publisher harmless against loss, damages, expenses, awards, and judgments arising from breach of any such warranties.
Section 6: The Reuse of Third-Party Works
The Publisher requires that the Author determine, prior to publication, whether it is necessary to obtain permissions from any third party who holds rights with respect to any photographs, illustrations, drawings, text, or any other material (“third-party work”) to be published with or in connection with your Work. Copyright permission will not be necessary if the use is determined to be fair dealing, if the work is in the public domain, or if the rights-holder has granted a Creative Commons or other licence. If either the Author or Publisher determines for any reason that permission is required to include any thirdparty work, the Author will obtain written permission from the rightsholder.