Planning the Evaluation of Patient Engagement in the PriCare Research Program

Authors

  • Alya Danish Université de Sherbrooke

DOI:

https://doi.org/10.3138/cjpe.70805

Abstract

The involvement of patients, their families, or their representatives is becoming
increasingly common in health-care research. However, theoretical justif cation
of patient engagement (PE) and consistent guidance on how to include patients as
key stakeholders on research teams are still lacking. Tis paper describes how the Pri-
Care group integrates PE into its program’s governance structure and uses a program
logic perspective to engage patients in the planning phases of a research study based
on resources, processes, and relationships, guided by the SPOR-CIHR’s PE framework.
Te PriCare approach facilitates the evaluation and continuous improvement of PE.

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Published

2022-04-19

Issue

Section

Practice Note- English